HI there, I just finished reading your story and I can relate to this in many ways. I have 2 children w/a rare genetic syndrome. Both of my children have had early interventions, many therapies to help w/muscle tone, balance, coordination, speech and vision therapy. My oldest is 12 and we have been hs'ing him for the past 4 yrs. At first we tried a private school for pre-K and K. They did not have the resources to help him where he struggled the most. Things went ok while he was in a smaller class, but as he progressed the class size got larger and he regressed. During this time pd. we sought out private therapies for everything! When we realized that a private school could not help him specifically with his special needs we began to consider hs'ing. When we announced this to family and friends we got negative feedback. How could we do that to him and not give him the "specialized" education he deserves? This was a disservice to our son everyone told us! No One supported our decision and we were lead to believe that we could not possibly do this on our own!
During that desision making process my DH needed to re-locate due to his job. I found out I was pregnant w/baby #2 and pregnancy and I don't get along very well! While my Dh left to find us housing and get settled in his new position I was selling a house, struggling w/pregnancy and a special needs little boy. How could I possibly take all of this on myself? I was already struggling and exhausted. We decided to try out the public school (which was ranked #2 in the county that we lived in). We put him in K again. The 1st yr. went ok. We had a seasoned teacher. He made it through that K yr. w/half-day schedule and small class size. We were introduced to the IEP process etc. All the while we cont'd to seek private therapy for him. We quickly learned that the therapy they gave him in school was NOTHING compared to what he received in Early Interventions or privately. He ended up having group therapy sessions for 30 min. 1x/wk. The group consisted of at least 8-10 kids at once. He received NO one-on-one time w/any therapist in PS.
After the first yr. in PS we decided (b/c of life circumstances) to try 1st gr. in PS. We had a new baby in the house and he too was diagnosed w/the same genetic syndrome...so the process started all over again w/baby #2...Early Interventions etc. Again, we re-evaluated the PS situation and since K wasn't too terribly bad we tried again and put our oldest in 1st gr. Long story short, It was a NIGHTMARE! He was now in a lger class, a newer teacher etc. He was constantly struggling academically, physically, socially etc. We had MANY mtgs. w/the teachers, specialist etc. So often we felt unheard in mtgs. In their eyes we weren't specialists...just clueless parents. At the end of 1st gr. (we somehow made it through that yr?!?!) there was NO question in my mind where this child needed to be. He needed to be where he was most understood and respected. He needed to be where his needs were being met...not the needs of an institution! We decided enough was enough, we watched our child regress in PS, lose his self-esteem etc. We then decided to follow our instincts...NOT everyone elses opinions (which were based on ignorance and fears!). The following school yr. we began hs'ing.
During the 1st yr. of hs'ing we had moved and between both children we were working with 8 different therapists! A new town, new tharpists, no extended family support. We were literally on our own or so I thought. Then I started to find local hs groups, we reached out to other hs'ers in similar situations etc. We were suddenly not so alone or clueless. And after watching our son relax and not be so stressed out all of the time he began to learn again!
He is old enough now to explain to us how K and 1st gr. made him feel. It does break my heart when I hear those feelings. His wish is HS forever! He has made great progress, often taking baby steps and then suddenly it's leaps and bounds! I will not lie to you...it can be draining w/out the right support. If you have any friends or family that can help (even just to lend an ear for you to bounce things off of) take the help! The 1st yr. was mostly spent unschooling and in therapy. It was an adjustment yr. It was hard teaching a lesson while having a baby that wanted mommy ALL of the time! But, we didn't give up, we worked around difficulties, adapted curriculum and unschooled often. Playing educational games, taking some field trips w/other hs'ers etc.
This CAN be done! Listen to your gut unstincts about the choices you must face. The specialist may be trained in a specific area of development, but they are NOT trained in caring for your whole child. Only you are the specialist in that regard! This is coming from a mom who went to college to be an educator, realized before she had children that something was calling her to do something different w/her own kids when it came time for them to go to school. That is why we inititally chose private school. I personally spent time as a teacher in both the private and public settings. As an educator I don't ever want to step foot again in a PS! For us HS is best! My son has freinds that respect him now and understand him. They support his differences.
I wish you much luck with your future endeavors. Please, know that the HSI community is here for you. HSI can help to educate and guide you with the process. It is good that you have contacted your local HS community too! Keep in touch with us here at HSI!
Best Wishes,
~a